If you are from a family with familial MND and there is a known genetic fault in the family, you are invited to participate in an interview with researcher Ashley Crook from Macquarie University who is undertaking a study investigating experiences of familial MND, receiving genetic information, and any subsequent decisions made such as whether to speak to a genetic counsellor or to have genetic testing. It is hoped that information from this research can guide the MND care and genetic counselling community on best practice guidelines for familial MND. See here for more info.
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